A 16-year-old Indonesian boy, Ari Wibowo is battling a terrible skin condition. As a result of the disease, he sheds his skin like a snake every 41 days and must constantly rub his body with moisturiser to stop it hardening and seizing up, according to odditycentral.com. In addition, he must also soak his body in water every hour.
Doctors in Indonesia have been unable to treat the teenager since he was born, leaving him with a terrifying appearance. Experts described his condition as Erythroderma, an inflammatory skin disease also known as ‘red man syndrome’ that causes the skin over almost the entire body to become scaly and fall off.
He and his family now live by a routine of constant washing and dressing his skin with creams. Still, the boy is trying to live a normal life in his village.
Ari is taking lessons, but is forced to study alone because of ignorance about his condition in the community.
“No schools are willing to accept him because they fear his skin condition would be contagious to teachers and other students,’ Mr. Lubis, a photographer documenting the boy’s life, said.
The 16-year-old has difficulty talking because of the condition and the vision in his right eye is impaired, while the left must be kept moist with constant drops.
He and his family now live by a routine of constant washing and dressing his skin with creams. Still, the boy is trying to live a normal life in his village.
Ari is taking lessons, but is forced to study alone because of ignorance about his condition in the community.
“No schools are willing to accept him because they fear his skin condition would be contagious to teachers and other students,’ Mr. Lubis, a photographer documenting the boy’s life, said.
The 16-year-old has difficulty talking because of the condition and the vision in his right eye is impaired, while the left must be kept moist with constant drops.
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